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The Underdogs

12/30/2010

THURSDAY, DECEMBER 30, 2010

For the past 10 months Noah and Adam have been filmed by Brandon Katcher of Lost Summit Films; its a five part documentary on the shop and their racing endevures. For the most part the videos have said very little about the private lives of the guys. No real mention of the families or kids, but lots on their lives at the shop.

This current episode featured Dylan. Up until this point Dylan's condition has been pretty private with very few people really knowing what is going on with him.

If you have a moment please take a look at the video. Thanks.

http://theunderdogsdoc.com/blog/

Happy new year to everyone!!!

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Listed

12/21/2010

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TUESDAY, DECEMBER 21, 2010

Well today was the day. Dylan has been listed for transplant. He is officially on the list. He PELD score is very low. His Liver function is just still too good, no make that perfect, but with those varices lurking in his stomach it is making everyone a little nervous. He would never really get an offer where he is now, but have been told that they have gotten offers for and transplanted kids with numbers below zero. So now we start the work-up on Noah all over again. It was completed three years ago and he WAS a match so we are hoping for the same results. Our goal is to get this done in time to avoid another endoscopy, but more importantly another bleed. A bleed could be devastating or even fatal for Dylan.

Our next step is to have an EKG, ECHO, CT scan and tons of labs done on Noah. We are hoping to have it done in one day to avoid multiple trips and wasting time. That should let us now if everything is still a go. IF we get an offer in the mean time we will take it, but not likely to happen with Dylan's score where it is. It means the world to us that Noah is a possible living donor, but it does complicate things. Noah will be out of commission for almost 3 months. No work. I will not be working. I will be taking care of both of them. Not sure what our future holds but I am very happy it will be with a healthy liver for Dylan.

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Another Endoscopy

12/11/2010

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SATURDAY, DECEMBER 11, 2010

Yesterday was yet another endoscopy for Dylan. He was very nervous this time and was not happy at all. He said "I hate this part of my life" and "Why was I born this way". It tore my heart out! The good news is he doesn't remember much because of the versed.

It should be the last endoscopy he will have. The varix in his esophagus is just about gone from the banding which is great, but now there are 3 cardiac varices. Those are the dangerous ones. The hope is to have him transplanted before there is an issue with them, so the race is on.

Dylan was discussed yesterday at Stanford's weekly meeting. Dylan will be listed for transplant. We are getting authorization for Kaiser and some labs done then he will be on the list. I am not sure what to feel. There are a lot of mixed emotions, but I know it will be the best out come for Dylan. Once Noah's work up is done we will scehdule his surgery. It will most likely be in January.

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Stanford/Transplant Eval

12/6/2010

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MONDAY, DECEMBER 6, 2010

Well last week we were supposed to find out if Dylan would be listed for transplant. They have a weekly meeting about all the cases and Dylan was up for discussion. This meeting was canceled due to an emergency surgery that involved most of Dylan's doctors at Stanford. So now we wait another week. It should happen this Friday and then we will know for sure...

Since Dylan had the bleed I knew in my gut we were facing transplant, but now it is real. We have SO much to get in order before this happens. Dogs, everything financial, storing all of our things or continuing to pay rent where we are... so I am making lists and checking them twice, but not related to this festive time of year. With all of this going on I still have a terrible fear of a possible bleed. We are having monthly endoscopies done for banding and sclerosing of varices. This is to help minimize the chance of a bleed, but they can still happen. We will continue to do these until transplant.

I am ready mentally for the transplant, or at least ready for it to be over. I am ready for Dylan to have a "normal" life and really start living. Please pray for Dylan this holiday season.

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The Underdogs

Listed

Another Endoscopy

Stanford/Transplant Eval

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