Scare last week
Dylan is doing okay. We had a scare last week with a fever of 103+. Turned out to be just a double ear infection. Funny how I consider that minor. We have finished his antibiotics and we will see if the fever comes back. Dylan still itches all the time. He is miserable. All the time. Some days are better than others but I can see it in his eyes. We meet with Stanford again in August to see how they think he is doing. Labs as of last week were good. His ALT and AST were elevated and his INR was lower than usual. They are the deciding factor though. We will keep you posted.
The Journal section of the site will be kept up to date with Amber and Noah's thoughts, feelings, and of course hopes...Thanks for taking the time to read and please feel free to comment.