-Amber
So much for the rash going away. As soon as the heat came back so did the all night itching and crying. I feel so badly for my little guy. He is tough, very tough. We will be back to his GI at the end of next month. His asthma is getting worse. We will be on pulmicort everyday now. He is getting better about the breathing treatments. Not as much fighting. Meds are the same. Still on 5 a day. Sometimes I get tired of giving them to him. I can't imagine how he feels about taking them. Any way we will check in later.
-Amber
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Well, we are in a holding pattern with Dylan. We will be going back to Stanford pretty soon for another evaluation. We will determine if we should move forward with living realted donor. Dylan's itching has improved and the rash is going away as well. However, his tummy keeps getting larger and larger with more and more veins sticking out. Dylan's liver feels smaller than it ever has which means his liver is developing scar tissue. His labs are great though. the best they have ever been. That is a comforting thought. We will just keep watching and seeing where he wants to go next. I guess that's all we can do.
-Amber |
Our Journal...The Journal section of the site will be kept up to date with Amber and Noah's thoughts, feelings, and of course hopes...Thanks for taking the time to read and please feel free to comment. Archives
February 2024
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