Dylan had a follow up endoscopy done last Friday to re check the varix that was banded while we were in the hospital. Dylan's doctor could tell where the bleed occurred last time and place new bands on either side of it. This should help prevent it from bleeding again which is great but it now puts more pressure on the portion down below. This portion of the varix is what they call a cardiac varix. It sits in the stomach. These varices can not be banded because of where they are. If they rupture it can be a brisk bleed and lead to shock. Not exactly words you want to hear about your son.
I have to say it hit me pretty hard. I had fear and panic all night long. Picturing the varix in his stomach and what on earth would I do if it bled. The doctor seemed very concerned. He wanted to make sure that the transplant team was aware of this finding. He emailed our coordinator that day. We are scheduled to see them on the 29th and asked us to make sure we did mention this to them.
My hope, and at the same time fear, is that this will put Dylan on the list. We know Noah can donate, but our next step is to list him. The bottom line is that he needs a new liver. It is the only option for Dylan at this time. Another bleed would be catastrophic.
Please keep Dylan in your thoughts and prayers.