SATURDAY, DECEMBER 11, 2010
Yesterday was yet another endoscopy for Dylan. He was very nervous this time and was not happy at all. He said "I hate this part of my life" and "Why was I born this way". It tore my heart out! The good news is he doesn't remember much because of the versed.
It should be the last endoscopy he will have. The varix in his esophagus is just about gone from the banding which is great, but now there are 3 cardiac varices. Those are the dangerous ones. The hope is to have him transplanted before there is an issue with them, so the race is on.
Dylan was discussed yesterday at Stanford's weekly meeting. Dylan will be listed for transplant. We are getting authorization for Kaiser and some labs done then he will be on the list. I am not sure what to feel. There are a lot of mixed emotions, but I know it will be the best out come for Dylan. Once Noah's work up is done we will scehdule his surgery. It will most likely be in January.
Yesterday was yet another endoscopy for Dylan. He was very nervous this time and was not happy at all. He said "I hate this part of my life" and "Why was I born this way". It tore my heart out! The good news is he doesn't remember much because of the versed.
It should be the last endoscopy he will have. The varix in his esophagus is just about gone from the banding which is great, but now there are 3 cardiac varices. Those are the dangerous ones. The hope is to have him transplanted before there is an issue with them, so the race is on.
Dylan was discussed yesterday at Stanford's weekly meeting. Dylan will be listed for transplant. We are getting authorization for Kaiser and some labs done then he will be on the list. I am not sure what to feel. There are a lot of mixed emotions, but I know it will be the best out come for Dylan. Once Noah's work up is done we will scehdule his surgery. It will most likely be in January.
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