Copied form Liver Families Forum:

Well we are going back to Stanford for Dylan's second evaluation. We found out that Dylan's doctor has not been doing all he was supposed to do. Stanford had asked him for periodic updates on lab draws and notification of any hospital visits no matter what the reason. Needless to say that hasn't happened. Dylan has had two hospital stays for what has been diagnosed as asthma, but the doctors have always been concerned it is due to the size of his liver and spleen that he is having trouble breating. Dylan's doctor also has not been forwarding lab work over. Dylan's labs have been great though. On the other hand his itching is pretty bad again. There are veins poking out all over his body and he has not gained weight or grown in over 8 months. 


-Amber

Well, it has been awhile. I guess that is good. Nothing much to report. He is pretty stable, however he still itches really bad. He is hanging in there though. My little trooper. His Stomach is getting larger and larger everyday, which I fear is from his condition (acsites, not sure of spelling). I guess we will see when we go back to stanford, whenever they decide to call us. We will check in later.       

-Amber