Dylan W Levy
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Transplant Day 4

2/11/2011

6 Comments

 
Well today started off in the right direction for Dylan. We were told early in the morning Dylan would be able to start clears and would be moving up to the main floor. That is right...my child is a stud. Dylan has amazed all the doctors with his quick recovery. I know it is because Noah's liver is just perfect for him. 

We are now on the main floor and in a private room due to Dylan being immunosuppressed. Our room is really nice. The best part is the shower and bathroom in our room. That I could get used to. Dylan is down to one central line in his juggular and a line in his arm as back up. He is having clear liquids and let's just say everything is moving in the right direction ;) If it continues this way he may move to solid foods as early as tomorrow. 

Noah has had it rough. The pain meds make him feel woozy and out of it and he is not being able to sleep. He called me tonight pretty upset. He has not slept in days. I called the charge nurse in Noah's unit and let him have it. It is completely unacceptable that Noah is not being managed properly. I can not be with both of the guys at the same time and I feel that it is their job to make sure he is comfortable. Noah called me back later and sounded better. I then talked to him on the phone until he was sleepy. I hope now he is resting. I will post more tomorrow, but now time to try for more than 4 hours of sleep.

-Amber
6 Comments
Gabriel Z.
2/10/2011 04:45:00 pm

I'm sorry noah is having so much pain. He really is an amazing father, husband, person, human being really. I'm glad to hear D.Man is doing so well and I just hope Noah starts to get more comfortable soon. He deserves as fast of a recovery as his son so that your family can be spending more time together.

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claudia
2/11/2011 04:23:38 am


‎"For I am the LORD your God, who upholds your right hand, Who says to you, 'Do not fear, I will help you.'" - Isaiah 41:13

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Scott Portocarrero
2/11/2011 01:28:38 pm

Dylan nor Noah deserve the pain they are going through it seems sometimes the best of people go through the worst of shit. Please give the boys my blessings.

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Kerryann
2/11/2011 04:06:53 pm

Good to hear Dylan is doing well with his recovering but sorry to hear Noah's pain isn tbeing managed well. Hopefully after you talking to them they will make a better effort to keep him comfortable....

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Tracy S
2/13/2011 12:22:33 am

Continuing to send love and good thoughts from Tahoe...I wish I could say that Noah isn't having a typical experience with the hospital, but my family has had similar. It seems like you really have to be a squeaky wheel to get proper care, so good for you Amber for giving them hell! Wishing both of your boys quick recovery...please keep us posted when you're able,and please take care of yourself as well. -Tracy S.

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Stacey P.
2/14/2011 07:14:08 am

Hi Amber- I am so glad to hear things are going well. I cant wait to hear how Dylan is doing today! We met on the Liverfamilies site and my daughter Morgan is on the transplant list now at LPCH! Dylan gives me hope for Morgan!! Prayers!

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