Well today started off in the right direction for Dylan. We were told early in the morning Dylan would be able to start clears and would be moving up to the main floor. That is right...my child is a stud. Dylan has amazed all the doctors with his quick recovery. I know it is because Noah's liver is just perfect for him.
We are now on the main floor and in a private room due to Dylan being immunosuppressed. Our room is really nice. The best part is the shower and bathroom in our room. That I could get used to. Dylan is down to one central line in his juggular and a line in his arm as back up. He is having clear liquids and let's just say everything is moving in the right direction ;) If it continues this way he may move to solid foods as early as tomorrow.
Noah has had it rough. The pain meds make him feel woozy and out of it and he is not being able to sleep. He called me tonight pretty upset. He has not slept in days. I called the charge nurse in Noah's unit and let him have it. It is completely unacceptable that Noah is not being managed properly. I can not be with both of the guys at the same time and I feel that it is their job to make sure he is comfortable. Noah called me back later and sounded better. I then talked to him on the phone until he was sleepy. I hope now he is resting. I will post more tomorrow, but now time to try for more than 4 hours of sleep.
-Amber
We are now on the main floor and in a private room due to Dylan being immunosuppressed. Our room is really nice. The best part is the shower and bathroom in our room. That I could get used to. Dylan is down to one central line in his juggular and a line in his arm as back up. He is having clear liquids and let's just say everything is moving in the right direction ;) If it continues this way he may move to solid foods as early as tomorrow.
Noah has had it rough. The pain meds make him feel woozy and out of it and he is not being able to sleep. He called me tonight pretty upset. He has not slept in days. I called the charge nurse in Noah's unit and let him have it. It is completely unacceptable that Noah is not being managed properly. I can not be with both of the guys at the same time and I feel that it is their job to make sure he is comfortable. Noah called me back later and sounded better. I then talked to him on the phone until he was sleepy. I hope now he is resting. I will post more tomorrow, but now time to try for more than 4 hours of sleep.
-Amber
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