Living donor and no insurance

Hello everyone... Well it has been awhile. Since our last post Dylan was seen by Stanford. The appointment went well. We started Noah's living related donor work up. Dylan's doctor has informed us that Dylan most likely has hepatic encephalopathy. This is what is causing his mood changes and what is making him see things that are not there. It is caused by his liver not filtering out the toxins. These toxins then start to, for lack of better words, poison the brain. So we are staying on the increased dose of meds. This makes for some interesting diaper changes. We have also increased his Actigall and Rifampin. Both of these help with itching.

Okay now for the bad news... Noah will not be able to be a living donor. Not unless we become incredibly wealthy. Noah is un-insurable due to a previously diagnosed heart condition. Now keep in mind that the heart condition has not been replicated or confirmed by any other doctor. It was a lone incident. Nonetheless, he is not able to have insurance without group coverage. It is the policy of Stanford that a living donor must be covered with insurance or "privately insured". So where does that leave us? I imagine that I am the next potential donor. So if things can not be sorted out with Noah, they will need to start a work up on me. We are upset by this but there is not much we can do. We are still waiting to hear back from Stanford as to what our next step should be. I am not going to let this stop the process for Dylan though. 


-Amber