Its been awhile since update
Wow, it has been awhile since we have updated. Dylan is doing okay. We just got out of the hospital for asthma issues. He was only there over night. Some of his doctors think it is not asthma and some how liver related. They think that maybe his large spleen and liver are pushing on his lungs or diaphram. So we will see if the breathing treatment around the clock will work. So far no help. The wheezing comes back 15 minutes after his albuterol. One positive thing is that his itching has improved slightly. The rifampin may be working. He still has his days, but I fear as it gets hotter here it may get worse. Only time will tell. So now we wait. Like it seems we always have to do. Stanford will see him in August and they will look at his case again. We will not list Dylan. It will have to be living donor. We have a long list of people who will help. His father at the top of the list and myself a close second. He gets labs drawen next week for his appointment on Friday. He will be two that day. Time files. As always we will keep you posted.
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The Journal section of the site will be kept up to date with Amber and Noah's thoughts, feelings, and of course hopes...Thanks for taking the time to read and please feel free to comment.