Yesterday was Dylan's eval at Stanford. Overall we are still very confused about what is in store for our little guy. Dylan's labs are still good so if they were to list him him would have a very low PELD, around 10. They say with the new system of listing that there really is no point of listing Dylan until he is ready. However, with Dylan's itching and little to no weight gain that it may be better to transplant sooner than later. They have started Dylan on Neocate formula, which is $55 dollars a can. He will need 3/4 of a can a day. This will try to help him gain more weight and continue to grow. We have started to treat him with Rifampin for elevated bile salts. They will be meeting to discuss Dylan's case today. We should no more later today. We will keep you posted.
-Amber
-Amber
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