Well last week we were supposed to find out if Dylan would be listed for transplant. They have a weekly meeting about all the cases and Dylan was up for discussion. This meeting was canceled due to an emergency surgery that involved most of Dylan's doctors at Stanford. So now we wait another week. It should happen this Friday and then we will know for sure...
Since Dylan had the bleed I knew in my gut we were facing transplant, but now it is real. We have SO much to get in order before this happens. Dogs, everything financial, storing all of our things or continuing to pay rent where we are... so I am making lists and checking them twice, but not related to this festive time of year. With all of this going on I still have a terrible fear of a possible bleed. We are having monthly endoscopies done for banding and sclerosing of varices. This is to help minimize the chance of a bleed, but they can still happen. We will continue to do these until transplant.
I am ready mentally for the transplant, or at least ready for it to be over. I am ready for Dylan to have a "normal" life and really start living. Please pray for Dylan this holiday season.